Our FTD Journey ~ The Wild Roller Coaster Ride with Frontal Lobe Degeneration.....

Monday, April 20, 2015

I HATE FTD!!!

This disease (FTD) is so strange . . . I never know what to expect. My husband has stopped with the outbursts, I am not sure if it is just part of the process or if I am just handling things better. Now he seems to have withdrawn even more and is sleeping all the time. Of course we still deal with him getting up all through the night. But this morning when I left at 7:45 he was sleeping on the couch with the TV volume very low and when I got home at 12:15 he was again on the couch sleeping but the TV was blaring loud. Over the weekend he was slurring his words at times almost like one would do if drinking (he doesn't drink). I think this disease is progressing really fast. I feel so scared. . . I wish I knew where he was in the progression. We meet again with the Neurologist on May 4th to go over his latest PET SCAN. Maybe we can get some answers then. It is such a roller coaster ride and today I am feeling down . . . .

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